A series of stories for creating awareness on Sickle Cell Disease
June 19th – World Sickle Cell Day 2021
NASCO is presenting 19 stories, a story every day from June 1st to June 19th to spread awareness.
This Part 3 contains stories of Day 13 , 14, & 15
** Stories and Videos are as shared by NASCO daily on Social Media **
13th story of NASCO’s “ 19 days,19 dreams “
Story of ASHA worker & #SickleCell Disease (SCD) warrior Gangotri from Annupur district, MP. Till she was 38 years old, she was not diagnosed with SCD. Thanks to Dr. @devi_shri45 & her team at @IGNTU @BabuBontha_ICMR that Gangotri got screened accurately.
14th story of NASCO’s “ 19 days,19 dreams “
#MustWatch story of #SickleCell warrior from Baran district, Rajasthan. Diagnosed with SCD at 20, and is employed in a state govt job. Unable to get UDID card under Right to Disability Act, 2016 for the last 3 yrs. Buying medicines from private chemist incurs huge monthly expense…
15th story of NASCO’s “ 19 days,19 dreams “
#MustWatch story of a young #SickleCell warrior from Nagpur, Maharashtra. Her father had SCD, but got married without understanding the need for pre-marital screening. The consequence – both she and her brother also have SCD. Brother and Sister have completed MBA, but have not got any employment. They manage by taking tuitions ….
Her story shows the need of why pre-marital screening is MUST & key to stop new #SickleCellDisease.
About National Alliance of Sickle Cell Organisations (NASCO)
National Alliance of Sickle Cell Organizations (NASCO) is India’s first voluntary, non-profit, national organization constituted by patient advocate groups (PAGs) to educate and empower Sickle Cell Disease (SCD) patients and caregivers.
NASCO mission is to increase awareness in the general public about SCD and advocate for better quality of life for SCD patients.
NASCO is a consortium of like-minded patient organizations across the country with a mission to support people living with Sickle Cell Disease.
National Alliance is also a member of National Council of Sickle Cell Disease formed under aegis of Ministry of Tribal Affairs and FICCI.