My Daughter and (ME) Myalgic Encephalomyelitis

ME is not about feeling a bit tired

Helen Ashby shares about ME on her Blog

“ I am a parent of 2 adult children who have complex health and social care additional needs

My Son Has Downs Syndrome and Autism.

My daughter has Myalgic Encephalomyelitis , Postural Orthostatic Tachycardia Syndrome, Trichotillomania and Autism “ – Helen Ashby

What is Myalgic Encephalomyelitis (ME)

Helen Ashby write on her Blog – mydaughterandme

Myalgic Encephalomyelitis or ME is often ‘unhelpfully’ called Chronic Fatigue Syndrome or CFS.

For this Blog Site I will only refer to the illness as Myalgic Encephalomyelitis or ME

ME is a Chronic Illness that affects every cell of the sufferers body. It manifests in symptoms affecting, the brain, the pulmonary, cardiology, digestive, hormonal, reproductive and nervous systems.

There is no medical test to diagnose ME, it is a diagnosis of exclusion and symptoms have to have been present continually for over 6 months for a diagnosis to be affirmed.

This blog will discuss the symptoms my daughter presented with in 2018 when Myalgic Encephalomyelitis and how she was treated by medical and educational professionals in the UK impacted on her life.

We will look at how I think Fluoxetine medication (Prozac triggered her ME), how she developed secondary POTS, Trichotillomania and was diagnosed with Autism. We will explore the concepts of pacing, stimming, masking, CBT/GET and education while chronically ill. We will also examine symptoms, including fatigue and brain fog.

Please follow the Blog mydaughterandme , and share for spreading awareness about Myalgic Encephalomyelitis (ME)

Helen Ashby
Helen Ashby

About Me

Hi, I’m Helen and this blog is to share with you my daughter, Elizabeth’s journey with Myalgic Encephalomyelitis (ME)! and PoTS and how she developed Trichotillomania and also was diagnosed with Autism. #AwarenessMatters

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