Author: Harsha K Rajasimha, MS, Ph.D. Editor: Sharlene Brown, Ph.D. When clinical investigators and study coordinators start planning a new study design, speed and efficiency are paramount. Running a clinical study takes careful planning. Whether this is your 1st clinical study or your 21st, the last thing you probably want Read more…
Dr.Harsha Rajasimha is a rare disease social entrepreneur globally recognized for his work in genomics data science, persistent advocacy, and technology innovations addressing grand challenges facing the estimated 350 Million people suffering from rare diseases world-wide. Harsha earned his bachelor’s degree in computer science and engineering from Bangalore University, a Read more…
Zoyeb Mohamed Zia shares his story to spread awareness on Ataxia. Zoyeb is an Assistant Professor of Zoology . HIs story was earlier featured on this site Ataxia is a degenerative disease of the nervous system. Many symptoms of Ataxia mimic those of being drunk, such as slurred speech, stumbling, falling, and incoordination. Read more…
On the International Ataxia Awareness Day (IAAD) – 25th September, Hasitha Illa shares her story to create awareness on Ataxia. Friedreich’s ataxia is a rare genetic disease that causes difficulty in walking, a loss of sensation in the arms and legs, and impaired speech. It’s also known as spinocerebellar degeneration. The Read more…
Sukanya who faces Rare Conditions called Graves’ Disease and Euthyroid Eye Disease (TED) sends in a poem which describes her health issues Sukanya’s article was earlier featured on Possiabilities This is poem about my disease…..Sukanya Das Hi. My name is Graves’Disease… JUST REMEMBER NOT EVERYONE GETS EVERY SYMPTOM!!!!!! I’m an invisible autoimmunedisease Read more…
Article – source and credit – https://www.refinery29.com/en-us/2020/08/9987054/new-teacher-challenge MELISSA BLAKE LAST UPDATED AUGUST 26, 2020, 8:32 PM .“Oh, look,” I deadpan as I read the latest message from someone letting me know that they saw my photo on TikTok being shared in a hurtful way. “Surprise, surprise!”I joke because I’m definitely not Read more…
Sukanya who faces Rare Conditions called Graves’ Disease and Euthyroid Eye Disease (TED) writes about her life’s journey. In life we don’t get enough scope for an honest confession, especially when it is relating to some sensitive topics like our disabilities, but fortunately and thankfully I got. I just want Read more…