Avoid These 5 Real-World Data Pitfalls When Planning your Patient Registry, Natural History, or Other Clinical Study for a Rare Disease

Author: Harsha K Rajasimha, MS, Ph.D. Editor: Sharlene Brown, Ph.D. When clinical investigators and study coordinators start planning a new study design, speed and efficiency are paramount. Running a clinical study takes careful planning. Whether this is your 1st clinical study or your 21st, the last thing you probably want Read more…

Social entrepreneur on a mission to bridge the clinical research divide between the USA and India with advocacy and technology

Dr.Harsha Rajasimha is a rare disease social entrepreneur globally recognized for his work in genomics data science, persistent advocacy, and technology innovations addressing grand challenges facing the estimated 350 Million people suffering from rare diseases world-wide. Harsha earned his bachelor’s degree in computer science and engineering from Bangalore University, a Read more…

GONA RUBIAN RANESA - by REYNOLS

Music & Down Syndrome – REYNOLS

Reynols is one of the longest running inclusive rock bands which  is led by a Down Syndrome drummer/singer called Miguel Tomasín.  Outspoken singer, drummer and spiritual architect Miguel Tomasin has Down’s syndrome and shapes the band’s unique and playful sense for conceptual sound art.  Reynols are living legends of the international underground. Many Read more…