She was a little innocent and a beautiful child. Suddenly a nightmare journey began for her. Her joints started aching , she lost all her hair and began having intermittent fever. Going through a life threatening situation to dancing and motivating others now, here is a remarkable story of KS Sangeetha .
She shares her story in her own words –
At the age of 14 I was diagnosed with Lupus. It was a very difficult process to diagnose . When it was diagnosed and confirmed , I could not understand what was actually happening around me . I was too young to understand the full implications , or understand the difficulties which lay ahead for me. My parents were my immediate support system and they explored all the best options for me . At that time, I understood that I have to help my parents from my side by cooperating with whatever they were doing for me . I believed in them strongly. While my pain was more of physical in nature , the pain my parents were going through was different . I was given a list of medicine by my parents and I used to follow it regularly.
With the diagnosis , I lost my School and College days, and began missing my friends and the happy days spent in the Schools. My struggles continued for a long time , and my overall health was also getting effected . Lupus, raised its ugly head at a crucial stage in my School life . It attacked my nerves during my 12 th std board exams. I had seizures , due to which I could not clear the Board Exams. I was confident that the failure was not due to me , but due to the health condition prevailing. An important point at this stage was – I failed , I accepted , but I went on ahead again. With the health issues I made sure that I took precautions and preparations well as far as my health was concerned, while I prepared for reappearing for the XII Board Exams. I cleared it in my next attempt . After clearing my Board exams , I decided to follow up with a Graduation and a career. I completed B com Marketing Management and then Post Graduation Diploma in Mass Communication .
Lupus affected mostly all my organs – Nerves , Uterus , Eyes , Kidney, Joints, Skin , Stomach , Lungs , Nails and I started getting very high BP
My health was deteriorating and was I hospitalized for quite a long time. I was kept in ventilator for four days and declared dead due to abrasion in my stomach . My kidneys failed , and I was put on Hemodialysis for four years . This was the longest and the most horrible part of my life. My worries were not limited with this alone. My problems and issues continued . During these days I was diagnosed with Skin TB, it took one a half years to get healed from it.
My parents took care of me like a new born baby and still they continue to do so. Every time, I had my dialysis schedule, they waited outside patiently and tirelessly . This endless care and love of my parents built confidence in me , and this helped me in developing a new version of myself. Silently , I continued to keep fighting this battle for 15 long years. There were many reasons and occasions for me to give up . But for all the love my parents showered on me , and the struggles they were going through, the least I could do was cooperate fully . This state of mind actually helped me too. By being calm and composed , I was gaining strength to go through the ordeals , and my parents were also getting energized to see me facing the difficult situations with such courage.
14 the of September 2018, my kidneys failed , and I was in critical situation where a kidney transplant was urgently needed. My mom donated one of her kidneys, and she gave birth to me a second time. Even after a renal transplant Lupus patients do not live a normal life as other normal renal transplant cases. I still rely on medicines, and even now Lupus is positive . I still have high blood pressure and fluctuating sugar levels.
With so many health issues on hand , my normal life was sidelined. There was always a sense of urgency and caution all around me. I hated it when people looked at me with pity and were always talking about my health conditions . Though I had many interests , I did not discard them. I kept them stored safely , because I believed that I will pursue my interests.
Media is my passion, and I pursue this field with a keen interest . For me , performing on the stage always gives me a thrill. Even if it is not for competition , I always like to do classical dance at events. Now I am an actor and a model, and I have performed in various short films and web series. Have been accredited by many awards, and the recognition really keeps me encouraged to do more.
I get invited to be a Guest Speaker , and sometimes as the Main Speaker. At the time when I was struggling , I never expected that one day I would be motivating others .
Now , I have my own YouTube channel which covers various topics and online coaching
1.Support and love from my parents
2 Dancing and Choreographing
3.Singing
4.Working as a Motivational Speaker
5.Support from Doctor
By imparting even a little bit of knowledge , or by cheering up a couple of persons, my soul gains happiness without any further expectations.
I was blessed with strong supportive parents , and I understand how important this is when one in fighting a battle all around .
I hope to do more and more and set an example for all those who are battling with any difficult circumstances. I would like to send a message that nothing is impossible in this world, unless YOU wish to Quit.
Believe in yourself , and convince yourself and say bravely – It’s Possible
