A series of stories for creating awareness on Sickle Cell Disease
June 19th – World Sickle Cell Day 2021
NASCO is presenting 19 stories, a story every day from June 1st to June 19th to spread awareness.
This Part 3 contains stories of Day 17 , 18, & 19
** Stories and Videos are as shared by NASCO daily on Social Media **
Day 17
17th story of NASCO’s “ 19 days,19 dreams “
24 year old #SickleCell warrior from Assam. Got diagnosed with SCD through govt. screening. Every 3-4 months, has to be admitted to hospital because of severe pain crisis (PC). Through online consultation with Gujarat Doctor. Started HydroxyUrea now.
Day 18
18th story of NASCO’s “ 19 days,19 dreams “
18th story is of #SickleCellDisease warrior from Ranchi, Jharkhand who now works with @SickleCellJhark @jharkhand_thal as counsellor to 600+Thalassemia & #SickleCell warriors.
Vimla was alone in her childhood. Lost her father in early age. She got a mission once she got associated with Jharkhand Thalassemia foundation. She navigates patients and parents now, she feels happy as society accepted her. She got married and living a happy life. Keep enjoying your life and keep living the purpose of helping others – best of luck yo you
Day 19
19th story of NASCO’s “ 19 days,19 dreams “
Moving story of a father, with Telangana police ,how his son & daughter got #SickleCellDisease (SCD), because Pre-natal test during pregnancy was ‘missed’ by Doctor. 5 years after GOI’s RPWD Act, 2016, UDID card is still not given to SCD warriors in Telangana.
About NASCO
About National Alliance of Sickle Cell Organisations (NASCO)
National Alliance of Sickle Cell Organizations (NASCO) is India’s first voluntary, non-profit, national organization constituted by patient advocate groups (PAGs) to educate and empower Sickle Cell Disease (SCD) patients and caregivers.
NASCO mission is to increase awareness in the general public about SCD and advocate for better quality of life for SCD patients.
NASCO is a consortium of like-minded patient organizations across the country with a mission to support people living with Sickle Cell Disease.
National Alliance is also a member of National Council of Sickle Cell Disease formed under aegis of Ministry of Tribal Affairs and FICCI.
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